Part 2 of 3 FTD Advocacy Updates 🚨
A huge shout to @spencer_cline22 and his future brother-in-law Paul, who are cycling their way across America. There aren’t even pro cyclists! This is just wild! But that’s the effect FTD leaves on us. It makes us passionate and motivated to work for change and to just be seen. Lemme tell you something, we see you Spencer and Paul! I can also see you guys are getting media coverage out there too!
I can imagine what Bruce would say, “I hope they remember to hydrate.” 😂 I second that. Stay strong and safe out there! I’m so proud of you guys.
Please give @spencer_cline22 a follow to root them on and head to my link in bio to donate, if you can 🚴🏽🚴🏽💨
@theaftd#frontotemporaldementia#ftdawareness
Part 1 of 3 FTD Advocacy Updates 🚨Delaware will be the third state to recognize FTD Awareness Week, Sept. 22-29th 2024!
I want to thank Jeanne C., from Delaware for using her voice to bring awareness to her home state. This is so meaningful and impactful and I’m bubbling with excitement over here!
If you would like to know how to get FTD Awareness Week recognized in your home state, go to the link in my bio where you’ll find @theaftd Resolution Tool Kit. Keep going team! 🥰
Bruce would call it my “birthday month.” So we must celebrate! I’m blessed and grateful to have family and friends (in this video and afar) who made it so special for me all month long 🥰 There’s still a few days left of June and I’m going to ride this baby out till the end!
To celebrate #BrainAwarenessMonth we held our first “Make Time Meet-Up.” So many great women came, we made new friends and talked about the importance of women putting our brain health first. Our Meet-Up even hit 3 of the 6 pillars to great brain health: 🚶🏻♀️Physical Exercise: We took a brisk walk by the ocean. 💊Food & Nutrition: We supported our brains with our Make time for Brain Health drink supplement and snacked on delicious @moshlife bars. 👯♀️Social Interaction: We walked, talked and made meaningful connections.
There is nothing women can’t do when they join forces and put their voices together. The Make time Movement is determined to change the 1 out of every 6 women #alzheimers statistic! Join the Make time Movement! Our brains matter! 🧠🌈💞
Wishing you the Happiest Birthday @arthurelgort !
If it was jumping on the bed at The Ritz in Paris, or jumping through Russia, or on the beach in St Barts. An Arthur trip was always a memorable one 💞💫
Head to my link in bio to register!
@lorenzos_house Youth Summit is a free virtual worldwide event that unites children, teens and young adults of a parent living with, or has lived with younger-onset dementia of any form. An inspiring event together to share common story, exchange carer strategies, move forward advocacy initiatives and build community. Their Youth Summit is designed and led by over 30 youth and over 20 Dementiacators (educates on dementia through lived and/or professional experience). Thank you @dianacose3 and team for being a safe place for our children and families to land.
#youngeronsetdementia#ftd#youngeronsetalzheimers#lorenzoshouse
Becoming a FTD advocate has brought some power and control back in my life where this disease just takes. Being able to use my voice for my family and to be of service to the next family is empowering and has made this journey bearable.
In my link in bio you’ll find The AFTD Resolution Toolkit. This will give you the tools to take those first steps to get FTD Awareness Week resolution recognized in your home state. All you have to do is just start. Our whole FTD community will be here rooting you on from the sidelines!! 💞 @theaftd#ftdawareness#frontotemporaldementia#ftdawarenessweek#endftd
For a disease like frontotemporal dementia (FTD,) that is commonly under and misdiagnosed, awareness is essential. I’m so pleased to share that California will be the 2nd state, alongside NY, to recognize FTD Awareness, September 22nd-29th 2024.
On behalf of myself, @theaftd and all our advocates who worked on this, I want to thank Governor @gavinnewsom , Assemblymember @bmaienschein , and Senator @senbrianjones for their support of the FTD Awareness Week Resolution. This is key to raising awareness, changing public policy and perceptions around dementia.
What a win for our FTD community here in our home state of California. I needed to bring the girls and my mom to Sacramento to see this one! 48 more states to go! Who wants to take the reins and advocate to get more states to recognize FTD Awareness Week?!
#ftdawareness#frontotemporaldementia#frontotemporaldegeneration#ftdawarenessweek
I learned many things at the screening of, “For Love & Life: No Ordinary Campaign.”
• ALS or Lou Gehrig’s disease happens sporadically in 90% of cases. Meaning, it could just happen.
• That rare diseases aren’t really rare when they affect over 300 million people globally. Most are not well understood, and less than 5% have approved treatments.
• And that Brian Wallach and his wife Sandra Abrevaya are hands down, the most selfless badass powerhouse of a couple.
In the midst of Brian and his family’s life taking a complete turn, they founded “I AM ALS” as well as ultimately changing the face of ALS forever alongside a community of fierce advocates. Neurodegenerative diseases such as frontotemporal dementia (FTD), Huntington’s, MS, and Parkinson’s to name a few, will benefit from the ripple effects of their advocacy. I’m inspired by their determination that in the midst of their pain, they turned it into their purpose. I’m grateful for their immense kindness and generosity which will and does help millions of families who find themselves here. What a legacy they have made. I believe this movie will inspire others to fight for change. Their story premieres May 28th on Prime Video. Please watch and prepare yourself to feel moved and uplifted.
@alsyougone@abrevayasandra@iamalsorg@katiecouric@amazonmgmstudios@chanzuckerberginitiative
Blooper reel! Happy one year anniversary to us over @maketimewellness ! It’s been a year of growth, learning and fun. @helenchristoni and I have accomplished more than we could have dreamed this first year. With our purpose still crystal clear—we are on a mission at Make time Wellness to get the world thinking seriously about women’s brain health. Because when was the last time someone spoke to you about your brain? Make time and come join the movement 🌈🧠💞 @maketimewellness@maketimepod#maketimewellness#brainbodybeauty#maketimepodcast
