Sandra

@abrevayasandra

A new public account focused on our work to transform brain diseases through & …and my journey as a caregiver 💪
Posts
13
Followers
2,011
Following
269
As you all may know, I am an executive producer on @forloveandlifefilm , a documentary on @primevideo , about Brian Wallach (@alsyougone ) and Sandra Abrevaya (@abrevayasandra ) and their work with @iamalsorg . Today on my podcast, Next Question, we have an interview with the two of them and the film’s director and producers! Please listen—link is in my bio or wherever you get your podcasts—and please stream the film on Amazon! 🤞🏼🤞🏼👏🏼👏🏼
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20 days ago
Inspiration now streaming. Need a pick-me-up to get motivated to keep going when times are tough? Check out our film. Turn hope into action. Rinse, repeat. Support one another. Solve problems big and small. 💙
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20 days ago
Surreal and wonderful to see our film’s trailer on the big screen at @yankees game. Perfect timing for Lou Gehrig Day. A beautiful moment for the @iamalsorg patient-led movement started by @alsyougone and @abrevayasandra , who stepped up to the plate to receive a Lou Gehrig jersey before the game. This community is amazing and just getting started. In memory of Lou and everyone we’ve lost, here’s to building a brighter future 💙
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28 days ago
Today is the day!!! @forloveandlifefilm is now available to watch on @primevideo !!!! 💙👏 Our very own @katiecouric executive produced the film which documents the incredible story of our friends, @alsyougone and @abrevayasandra who are spearheading a revolutionary movement to end ALS. Thank you again to @jacobsoboroff and @todayshow for shining a light on Brian and Sandra’s story. 💙
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1 month ago
🚨 If you watch one thing I do this year, I hope it’s this clip. It’s the first time I’ve ever teared up on the show because it is so meaningful to me…please watch it all the way to the end 😢 This week, it was surreal to have @katiecouric on set for the first time. She’s one of the main reasons I became a broadcast journalist in the first place. One of the main lessons I learned from her? Use the platform to highlights causes that matter. With that model in mind, one of the issues I’ve championed on TV for more than 14 years is fighting ALS. I’ve been so honored to host the annual walk for @youralsnetwork & profile incredible people like Nanci Ryder, @mariwinsor , and @adybarkan . One of the most heartbreaking tasks at @foxla was writing obits for all three of them. But one of the most inspiring things has been getting to know @bwall5020 & @abrevayasandra this week. Their lobbying via @iamalsorg has helped raise $1 billion in federal funds for research & changed the way patients can access drugs. Their story is the subject of the new @primevideo documentary @forloveandlifefilm , streaming on Tuesday. They’re so full of hope…and are actual proof that a few individuals *can* change the world. If you like this clip, I encourage you to share it out so more people can hear their story. You can learn more by watching our full episode at YouTube.com/ElexMichaelson Thank you 🙏 #iamals #katiecouric #forloveandlife #als #brianwallach #sandraabrevaya #barackobama #elexmichaelson
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1 month ago
Amazing billboard @forloveandlifefilm front and center Sunset & Doheny. Thank you @primevideo for elevating this story (literally in this case) #forloveandlife #als #documentary
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1 month ago
@alsyougone and @abrevayasandra are proof that one couple can change the world. 💜 #katiecouric #brianwallach #sandraabrevaya #als #awareness
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1 month ago
of all of the extraordinary people I’ve met working for @todayshow , @alsyougone and @abrevayasandra are among the most inspiring. the work they’re doing on ALS is incredible, and their doc, produced by our friend @katiecouric , is so important. please watch and stream their film May 28 on @primevideo . produced by @mspcowan .
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1 month ago
what an incredible blessing to meet @alsyougone and @abrevayasandra and talk about the work they are doing with @iamalsorg to turn ALS into a chronic, not fatal, disease. their new documentary “For Love and Life: No Ordinary Campaign” is remarkable. streams May 28 on @primevideo . cannot wait to tell you about it tomorrow on @todayshow .
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1 month ago
Such a special night to see our friend @phil.rosenthal in his sold out show! Phil lost his beautiful mom, Helen, to ALS and he has jumped in to support our work in so many powerful ways. He has become a dear friend, donated proceeds from his bestselling book Somebody Feed Phil to @iamalsorg and is an Executive Producer of our film @noordinarycampaign 🍿 So grateful for all the love and support @phil.rosenthal shows @alsyougone ❤️❤️
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1 month ago
In this morning’s @thesundaypaper Maria Shriver celebrates her brother Bobby’s birthday and what a gift it is to turn 70. As part of that narrative, she shares about @alsyougone and my journey. More to share with you all soon about what we’re embarking on with @mariashriver @sandygleysteen and @synapticurehealth on behalf of families fighting Alzheimer’s but for now just echoing Maria’s morning essay, “Now Is All You Have” hope you have a wonderful Sunday ❤️ Link to her full essay in my bio
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2 months ago
What’s it like caregiving for someone with a rare disease like ALS? What can the care movement learn from the fight to cure ALS? Next week, we’re hosting an important conversation between @aijenp and @abrevayasandra – co-founder and a board member of @iamalsorg , as well as wife and caregiver to @alsyougone , and CEO of Synapticure. You won’t want to miss this important conversation!
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2 months ago